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In this powerful episode of Patient Conversations with Leah, we meet Billie—a 41-year-old woman diagnosed with stage 3 ALK-positive non small cell lung cancer after months of dismissed symptoms and a missed window for biomarker testing. From being told she had pneumonia… to learning she had cancer… Billie shares her emotional and eye-opening diagnosis story, the missteps in her initial care, and what it means to ring the chemo and radiation bell—all while grieving the loss of both parents to cancer and raising a 10-year-old daughter. If you or someone you love has been diagnosed with lung cancer at a young age, especially non small cell or ALK-positive, this is a must-watch. We dive into: 🔹 Delayed diagnosis despite years of monitoring 🔹 The emotional toll of treatment and survivorship 🔹 Why biomarker testing matters before chemo 🔹 Mental health, therapy, and parenting with cancer 🔹 The unique challenges of young adults with lung cancer This is Part 1 of a 3-part series with Billie. Subscribe and turn on notifications to follow her story and hear about the power of community, support systems, and hope. #YoungLungCancer #ALKPositive #LungCancerAwareness #BiomarkerTesting #NonSmallCellLungCancer #Stage3LungCancer #CancerDiagnosisStory #CancerCaregivers #PatientStories #LCSM #chemotherapy #cancer #cancerfighter Chapters 00:00 Billie's Journey with Lung Cancer 05:24 Understanding Stage 3 Lung Cancer 08:43 The Importance of Biomarker Testing 09:43 Celebrating Milestones in Cancer Treatment 10:21 The Impact of Family History on Cancer Perception 12:36 Navigating Mental Health During Cancer Treatment 15:12 The Emotional Burden of Cancer on Families 17:45 The Role of Support Systems in Cancer Journeys ⚠️ Disclaimer This video is for informational purposes only and is not intended as medical advice. Always consult your healthcare provider for medical concerns or guidance. 📢 Welcome to the Young Lung Cancer Initiative! We are dedicated to raising awareness, sharing stories, and empowering/ supporting young people impacted by lung cancer. 🌐 Visit Our Website: https://ylci.org/ 🤍Follow Us on Social Media Instagram: @younglungcancer X: @younglungcancer Private Facebook Young Lung Cancer Patient & Caregiver Group: https://www.facebook.com/share/g/15PeZHUVDW/ Support Our Cause: https://givebutter.com/ylci YLCI Merch: https://www.bonfire.com/store/young-lung-cancer-initiative-1/ 📧 Contact Us Have questions or want to collaborate? Email us at younglungcancerinitiative@gmail.com
I coughed up blood- then came the lung cancer diagnosis at 40. Billie's story part 1
Young Lung Cancer Initiative 3-Part Patient Education Series on KRAS is here!🤍 This series features expert insight from Dr. Negrao, thoracic oncologist and researcher at MD Anderson Cancer Center and @leah_l_phillips as host! Here’s what you’ll learn: Ep. 1 – What is KRAS? Understanding the mutation, subtypes, co-mutations and why it matters Ep. 2 – Current treatments, including KRAS G12C-targeted therapies and beyond Ep. 3 – What’s coming: new research, clinical trials, and hope on the horizon for both first- and second-line settings Watch all 3 episodes on Young Lung Cancer Initiative’s YouTube Channel Kras #kras #lungcancer #cancer #cancerresarch #lcsm @oncogenecancerresearch
LUNG CANCER & KRAS MUTATIONS. #patientadvocacy #patientstory
WHO CAN RELATE?! 🙋🙋‍♀️ Chemo brain isn’t just from chemo. Brain fog, memory issues, trouble focusing — they can come from any cancer treatment: radiation, immunotherapy, targeted therapy, even the emotional toll of diagnosis. If you’re feeling off, you’re not alone — and it’s real. #ChemoBrain #CancerBrainFog #CancerSideEffects #YoungLungCancer #CancerAwareness #chemo #lcsm #cancerfighter Lungcancer Cancerpatient Chemotherapy Chemo brain is real. #chemo #chemotherapy #cancerstory
CANCER TREATMENT SIDE EFFECTS! #lungcancer #cancer
Sometimes you just gotta say it how it is - #cancersucks #lungcancer
In part 3 of this Patient Education Series, Leah from the Young Lung Cancer Initiative discusses the KRAS mutation and its implications for lung cancer treatment with Dr. Marcelo Negrao, thoracic oncologist and researcher at MD Anderson. They explore the current landscape of lung cancer treatments, particularly focusing on KRAS G12C mutations and the promising new therapies in development. The discussion emphasizes the importance of clinical trials, not just as last-resort options, but as viable pathways for patients at various stages of their treatment. Dr. Negrao highlights the need for ongoing research and the potential for new therapies to improve patient outcomes, especially for those with non-G12C mutations. The conversation concludes with resources for patients seeking more information about clinical trials and treatment options. Chapters 00:00 Introduction to KRAS and Lung Cancer Treatments 01:27 Current and Future Treatments for KRAS G12C Mutations 06:59 Exploring Second-Line Treatment Options 11:45 The Importance of Clinical Trials 15:18 Emerging Therapies for Non-G12C KRAS Mutations 21:01 Clinical Trials Beyond Last Resort 25:05 Resources and Support for Patients Request an appointment at MD Anderson: https://www.mdanderson.org/about-md-anderson/contact-us/askmdanderson/appointments.html Resource for clinical trials: clinicaltrials.gov 📢 Welcome to the Young Lung Cancer Initiative! We are dedicated to raising awareness, sharing stories, and empowering/ supporting young people impacted by lung cancer. 🌐 Visit Our Website: https://ylci.org/ 🤍Follow Us on Social Media Instagram: @younglungcancer X: @younglungcancer Private Facebook Young Lung Cancer Patient & Caregiver Group: https://www.facebook.com/share/g/15PeZHUVDW/ Support Our Cause: https://givebutter.com/ylci YLCI Merch: https://www.bonfire.com/store/young-lung-cancer-initiative-1/ 📧 Contact Us Have questions or want to collaborate? Email us at younglungcancerinitiative@gmail.com ⚠️ Disclaimer This video is for informational purposes only and is not intended as medical advice. Always consult your healthcare provider for medical concerns or guidance. #lungcancer #KRAS #KRASlungcancer #LungCancerAwareness #ClinicalTrials #YoungLungCancer #DrNegrao #MDAnderson #G12C #CancerResearch #NSCLC #CancerEducation
Pt 3 New KRAS Lung Cancer Trials Could Change Everything: What’s Coming Next- Dr Negrao, MD ANDERSON
These are the things no one says out loud — but every cancer patient deserves to hear. #cancersurvivor #cancerfighter #chemotherapy #cancersupport #cancersucks #cancerjourney #cancerawareness #raredisease #chronicfatigue Cancersucks Cancerpatient Cancervlog Diagnosis Chemo Chemotherapy Diagnosed Remission
You’re not alone 🤍 #cancer #lungcancer
Leah was diagnosed with stage 4 lung cancer. She has always been active and has never smoked. Lung cancer is on the rise in young people. #nsclc #lung#cure cancer
If I had a dollar for every time I heard this .. 🤑#lungcancer #cancerstory
Part 2 KRAS PATIENT EDUCATION SEIRES: What’s the current standard of care for KRAS-mutated non-small cell lung cancer? In this episode of the Young Lung Cancer Initiative’s education series, Leah sits down with Dr. Marcelo Negrao, a thoracic oncologist at MD Anderson, to talk about how KRAS-driven lung cancers are treated today and why treatment decisions often depend on more than just the KRAS mutation alone. Dr. Negrao explains why immunotherapy, often combined with chemotherapy, remains the frontline approach for most patients — and how key biomarkers like PD-L1 expression, disease burden, and co-mutations such as STK11, KEAP1, SMARCA4, and CDKN2A help guide treatment choices. He also breaks down what makes KRAS G12C-targeted therapies like adagrasib (Krazati) and sotorasib (Lumakras) important breakthroughs, while being honest about the challenges they present — from early resistance to variable responses. If you or a loved one is navigating a KRAS+ diagnosis, this conversation offers insight into how oncologists are personalizing care, what outcomes to expect, and how co-mutations can significantly impact treatment response. We also touch on emerging resistance mutations in EGFR patients, including KRAS G12D and BRAF V600E, and what that might mean at the time of progression. Whether you're newly diagnosed or looking ahead at next-line options, this episode is full of valuable, up-to-date information that every KRAS patient and caregiver should hear. Information for requesting an appointment at MD Anderson for self-referring patients: Phone: 713-792-6110 - option 1. Website: https://www.mdanderson.org/about-md-anderson/contact-us/askmdanderson/appointments.html. #KRAS #LungCancer #KRASG12C #NonSmallCellLungCancer #TargetedTherapies #Adagrasib #Sotorasib #Stage4Cancer #ThoracicOncology #PDL1 #STK11 #SMARCA4 #KEAP1 #CDKN2A #MDAnderson #CancerResearch #YoungLungCancer #YLCI Chapters 00:00 Introduction to KRAS and Lung Cancer Treatment 02:26 Current Treatment Strategies for KRAS Mutant Lung Cancer 04:45 Emerging Therapies and Their Impact 07:16 Understanding Co-Mutations and Their Role in Treatment 10:09 Future Directions in KRAS Research and Treatment 12:37 Conclusion and Patient Perspectives 🔔 Subscribe for more patient-focused education about lung cancer 📌 📢 Welcome to the Young Lung Cancer Initiative! We are dedicated to raising awareness, sharing stories, and empowering/ supporting young people impacted by lung cancer. 🌐 Visit Our Website: https://ylci.org/ 🤍Follow Us on Social Media Instagram: @younglungcancer X: @younglungcancer Private Facebook Young Lung Cancer Patient & Caregiver Group: https://www.facebook.com/share/g/15PeZHUVDW/ Support Our Cause: https://givebutter.com/ylci YLCI Merch: https://www.bonfire.com/store/young-lung-cancer-initiative-1/ 📧 Contact Us Have questions or want to collaborate? Email us at younglungcancerinitiative@gmail.com ⚠️ Disclaimer This video is for informational purposes only and is not intended as medical advice. Always consult your healthcare provider for medical concerns or guidance.
Pt 2 KRAS Lung Cancer Treatment Explained: Options, Co-Mutations & New Hope with Dr. Marcelo Negrao
Follow Samantha’s journey here: https://www.instagram.com/samtheadventurer86?igsh=MWxkaTMxb3djNzVqeQ== Samantha was diagnosed with stage 4 HER2 exon 20 insertion non small cell lung cancer at 37 years old. #cancerfighter #chemotherapy
Surviving & Thriving #lungcancer #cancer
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