Biomarker & Subtype-Specific Organizations

The mission of The Happy Lungs Project is to save the lives of RET-positive lung cancer patients by advancing research and treatment options. They fund and facilitate cancer research, and educate and empower patients to participate in clinical trials and lung cancer registries.

RET Positive is a nonprofit organization that unites patients, caregivers, and advocates affected by RET-driven cancers. The group provides support, builds community, and partners with researchers to accelerate the development of new treatments and improve outcomes.

EGFR Resisters is a patient-driven community of patients, survivors, and caregivers facing EGFR-positive lung cancer with hope, strength, and compassion. The group provides an active peer support network and advances education, research awareness, and advocacy to improve outcomes.

ALK Positive is an international nonprofit organization dedicated to improving the life expectancy and quality of life for people with ALK-positive cancer. The group supports patients and caregivers, funds research, and advocates for better treatments and awareness.

Oncogene Cancer Research is a charity focused on lung cancer research, awareness, and support for people with oncogene-driven mutations such as ALK, EGFR, ROS1, RET, KRAS, and others.

The Exon 20 Group is an international nonprofit dedicated to improving outcomes for people with EGFR and HER2 exon 20 insertion–positive lung cancer. The group supports patients and families, raises awareness, and funds research with the goal of turning exon 20 mutations into chronic, treatable conditions.

The MET Crusaders is your global, pan-tumor, biomarker support group for patients, care partners, and families.

This group is for anyone impacted by small cell lung cancer in partnership with Small Cell SMASHERS and LUNGevity Foundation. This group offers information and peer support.

NRG1 Energizers, pan-tumor, multi-stakeholder global organization for NRG1 Fusion-Positive Cancer providing oncology nursing services, direct patient navigation.

A multi-stakeholder patient-focused organization featuring fellow PD-L1 amplified patients, their care partners, and medical oncologists interested in this important gene amplification. This group is for people with PD-L1 amplification (CD274 on NGS testing).